24
Jan. 16, 2024
Jillian is a partner to her husband Donald, mother to her two rare warriors, Roman (5) and Stella (4), host of the podcast Confessions of a Rare Disease Mama, and rare disease advocate. She is very passionate about propelling research forward for all types of diseases (most especially rare diseases) and has been able to fundraise over $130,000 for research for her children's genetic condition (ASMD) over the past two years. In addition to her roles as a podcast host and full time caregiver/medic...